Information Exchange is dedicated to data collecting, audits, surveys and research – putting those in the field of voice in touch with each other. If you would like your project to be listed here, please email: email@example.com with the following information:
- Your contact name
- Your email address and phone number
- A brief description of your research project and objectives.
- A link to your proposed project (if available)
Disclaimer: Inclusion on this web page does not constitute endorsement by the British Voice Association.
Recurrent Respiratory Papillomatosis (RRP)
Contact: Emma Bellilos, AIR RRP. Website: www.rrp.org.uk.
Recurrent Respiratory Papillomatosis (RRP) causes wart-like growths in the airway making it difficult to breathe, speak and swallow. It is a rare condition (affecting 1-4 per 100,000 in UK population), but almost twice as common in children as in adults. There is currently no cure, and patients typically require multiple surgical interventions to remove the growths, which can grow back quickly. A national survey of ENT consultants around the UK (Donne et al., 2016) found that at least 16 different interventions for RRP were being used in the NHS, and there is a lack of data on their comparative safety and efficacy. Clinical advice is that the lack of information currently available on the condition and the relative risks and benefits of the various treatment options is very distressing for patients and their families. UK specific information is particularly scarce (most of what is available is US based and may not be generalisable to UK practice).
To address this evidence gap we secured NIHR funding (Research for Patient Benefit; PB-PG-0416-10041) to develop a national online database (AIR:RRP) to gather observational data on all interventions for RRP in NHS settings across the UK. Data collected includes: patient demographic information, medical assessment, voice quality assessment, surgical details and in-hospital outcomes for all hospital attendances.
Following feedback from a patient group, we developed the patient facing website which allows patients who have consented to participate in the study to submit voice assessment questionnaires whenever they feel there has been a change in their voice quality via a secure, online portal (so no need for additional hospital visits). Over the course of the study, this will give a much richer picture of the voice quality implications of the different treatment options.
Singing 2.0: Teaching Singing Online
Contact: Kelly Pecina / firstname.lastname@example.org / +61 402 421 334
This online survey relates to research investigating teaching singing online for my PhD at Macquarie University, Sydney, Australia. This research aims to benefit the singing teaching community, as well as educational institutions in relation to the delivery of music education online. All singing teachers who teach face-to-face, online, or both, and have at least two year’s singing teaching experience are invited to complete the online survey containing questions related to teaching singing. Even if participants do not teach singing online, their opinions are sought, as the purpose of the study is to explore the potential challenges and benefits for teaching singing online. Participation in the survey is anonymous, and should take no longer than 15 minutes to complete. An Information and Consent Form is included at the start of the survey, providing further information on the project. The survey closes 24th December 2019.
The pedagogical characteristics of elite voice teachers and the commonalities, if any, in their approach
Contact: Heather Fletcher / email@example.com / +61 405 630 660
This online survey relates to my PhD research at The University of Melbourne, Australia investigating the pedagogical characteristics of elite voice teachers and the commonalities, if any, in their approach. Participation is anonymous and a plain language statement at the start of the link explains the project in greater detail, including ethics approval information (Project ID 1750622.1). The survey takes approximately 15 minutes to complete and closes on February 4th.